Your world gets awfully small when you are in chemo
treatment. It includes your room (which
is constantly invaded by nurses and DRs), and the hallway in the oncology wing
(about 21 laps to the mile). Your room
has a bed, chair, couch (which at times was more comfortable than the bed), TV
and a bathroom. In truth, you don’t
need too much more than that since you constantly being entertained by DRs and
nurses taking vital signs, drawing blood, giving meds, examining, poking, and
prodding. In the course of my treatment
I saw over 2 dozen DRs from 8 different specialties including infectious
disease, wound management, cardiology, dermatology, Ear, Nose, and Throat,
ophthalmology, oncology, gastroenterology.
Of course they never show up at the same time making
sleeping in the afternoons almost impossible as literally every 15 minutes
another DR or PA is showing up to examine you.
If I had a dollar for every time someone came in and put a stethoscope
on me I could likely pay most of my medical bills. The most interesting part is the lack of
coordination across the specialties. At
times Pam and I were coordinating treatments across DRs, treatments that often
conflicted with each other.
Which brings me to the nurses and techs (nurses aids). To call them angels is an
understatement. They were my daily
care givers, my lifeline to the DRs, my counselor when I needed to know what a
procedure entailed, my calendar keeper for tests and meds, my advocate when I needed help, and often late night conversationalist when I
couldn’t sleep. In addition to their
medical duties they made sure we were fed, cleared our food trays, emptied and
tracked bodily fluids, and tried their best to protect our sleep. They held my hand through the bone marrow
biopsy, entertained me by drawing a caricature of my best chemo look, encouraged
me as I walked the floor, and checked in to get the latest on the birth of our
newest grandchild (another boy). Ring
for a nurse and the majority of the time they were there faster than the best
concierge. Seldom in the course of the
last 30+ days did I feel like I was anything but the most important patient on
the floor.
The demons are the daily challenges that you face that eat
away at your confidence. Sometimes its
new challenges like determining what the volcano wounds on my back are (turns
out to be Sweets Syndrome), needing Heparin shots (which are given in the
stomach), dealing with spiking fevers (which in turn require tapping a new vein
for more blood), getting cardio problems under control (more EKGs,
Echocardiograms, and x-rays) and the biopsy the wounds as well as the bone. Some things you know are going to happen but
it’s still a blow when they do. Like
your feet swelling up from the fluids till they look like a uni-toe hoof. Or the day when my shower looked like it
was used by Chewbacca…didn’t need that hair anyway. In most cases it’s not one big thing that
gets you, it’s the constant barrage of body breakdowns and the resulting
treatments and their side effects.
Got to love MRIs.
Put somebody on a slab, tell them not to move for an hour put in ear
plugs, headphones (with music), stick them in a small metal container that
resembles a casket and then blast the sound of machine gun fire at them. Occasionally ask them how they are doing but
don’t listen to the answer. And what’s the
point of the music? You can’t really
hear it while the machine is pounding away, but if you happen to find yourself
tapping your toe to a tune you are abruptly asked to stop moving. Like going to a dance where the music is
great and you can dance all you want as long as you do it in your head.
And then there is the food.
After a while everything smells and taste like hospital. My daughter says it’s the chemo and she can
smell it coming off me. It makes
ordering food interesting….I’ll have the white fish cooked in the chemo sauce
and the bland brown rice with the hospital smell. And what is it with cooking everything
until it’s dried out, soggy or flavorless?
I guess if everything taste like nothing then you know exactly what you
are getting. It’s one area where there
were no surprises.
The hospital smell also making wearing a mask pretty interesting
since you end up recycling your own air.
Reminds me of being stuck in a cab in India without air and with a
driver who clearly had been working a 24 hour shift in 100 degree weather. Popping an Altoid (strong mint) before putting
on the mask can help.
I apologize, I know I’m whining a bit. I’m no hero, just a guy making it through
this phase so I can move on to the next phase of treatment with the goal that
somewhere down the road there will be a cure.
But there are heroes on the floor and I admire them greatly. The family members who come day after day and
sit by the bed of their loved one even when they are sound asleep. Who sleep on the couch in the room overnight
when a cancer patient is having a particularly hard night. Who take on the burdens of outside life so
the patient can focus on what they need to do to get better. And then there are the cancer patients
themselves. The ones that have been at
it for over 6 months, who are facing daunting odds to recover and who are in
significant pain yet they fight on, day after day. I’ve seen the determination on their faces,
heard the cries of despair in the night, and seen them work to make it easier
on their loved ones who come to visit. They
are the real heroes.
Angels, demons and heroes…it’s a strange combination but
then again a cancer ward is a strange world.
Next time…finishing up Phase 1 and preparing for Phase 2.




